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DiscussionPost-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)Comment receiving replies
Replies to "Welcome to the discussion @jasonrn ! This has been a very powerful forum for those who..."
@andreab The first year was the hardest. No one prepared you for what happens when you go home and what life is going to be like. I dealt with PICS, PTSD, anxiety/depression, opiod withdrawl, neuropathy, losing my hair, dealing with scars from injuries I sustained while a patient from the oxygen tubes, feeding tubes, chest tubes, and trach; nevermind the impact it had on my family. The first few days in the ICU my family was called to my bedside to say good-bye,...this happened on more than one occasion. It was hard for some to let me back in after that. How do you let someone back in when you've come to terms with the fact that they are gone? Of course then we had to deal with just getting back to some type of normal again, which nothing is really quite normal after that experience and environment. Bills needed to be paid and then I had to deal with insurance companies and disability which do not want to pay claims. Those hoops and hurdles were extremely draining and frustrating and required lawyers and social workers. I had lost 85 lbs being in the ICU then gained a lot back from all the medications. I had extensive nerve damage from being put on my belly in the ICU for up to 18 hours and being rotated back and forth which took a team of 25 people the first couple times. The nerve conduction therapy to try and identify which nerves were impacted was a nightmare that required needles and small shocks. In spite of these adversities I knew my life had some meaning and pulled strength from places I never knew I had. I found amazing "helpers" along the way. I had a hand-therapist who helped me gain use of my hands again, a psychologist who helped me with through my PTSD, and healthcare providers who listened. I always share some words of wisdom that Fred Rogers (from Mr. Rogers Neighborhood) mother shared with him..."Look for the helpers." No matter how bad things are, there are always helpers. This gives me hope, and I use it to try and impact my interactions with others. Thank you for allowing this platform for me to share my story. You are a great example of a helper! 🙂