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Post-Intensive Care Syndrome (PICS) - Let's talk
Intensive Care (ICU) | Last Active: May 22 3:02pm | Replies (598)Comment receiving replies
@rckj I am doing great right now. So good in fact, you'd never guess I had any illness. I am infection free at this time and trying to remain that way. I have to be on antibiotics indefinitely to keep mirorganisms from invading my lungs. I was out of town for two weeks so I am enjoying being home and picking up my hobbies again. I am currently making jewelry to sell at a big artisan street fair in October. (I sold out last year). So, you have FOUR cats? I LOVE cats but cannot have them due to my lung issues. I have a 5 lb teacup poodle. She is adorable and smart. Your exercise regimen sounded good until you mentioned a long staircase! I have a two story home and I tell ya, my staircase is going to be the end of me! I have 37% lung function, which isn't too bad until one goes up and down stairs all day. I invariably forget my cell phone etc. It's always something.... My optimistic self says "that's exercise baby!" Your excercise sounds like a delicate balancing act. Get your strength up so you can get to the Mayo next month. I want you to know that I think about you often and just know that there is a gal in South Carolina that is rooting for team Rhoda!
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@windwalker hi Terri! Sorry it took me a bit to get back to you. I had a few tough days but managed to stay out of the hospital. On high dose IV antibiotics through my picc line for another infection (sigh...), hydrocortisone and watchful waiting. I seem to be slowly improving which is good. So glad you are able to do what you love and I agree those staircases are exercise! Fortunately I can mostly stay on one floor unless I need my clinical office. (I’m a psychologist) but am on medical leave right now. I miss my work but I’m not well enough yet. It helps to have an office in the house in terms of returning to part time work. Hey I had a teacup poodle when I was a child! They are wonderful. We used to call them pocket poodles. And yes we are the crazy people down the street with all those cats! It’s a large house and they all get along so it works. House doesn’t smell like cat which I would hate due to good cleaners but I know Mayo pulmonology is not happy about our troupe of adoptees. I can’t bear to let them go so the compromise is frequent cleaning of the house. Exercise is for me a delicate balancing act to get stronger, less deconditioned without pushing myself over into adrenal shock. Can and do premedicate for adrenal function, which helps. Hoping for Mayo soon but the doctors are conferring on when and what can be done so I wait slightly impatiently but I do need time to gain strength. So glad to be talking with you and wish you only the best from this gal in Massachusetts! Talk to you soon, I hope. Rhoda