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PCP advising fast taper

Polymyalgia Rheumatica (PMR) | Last Active: Jul 7 6:36am | Replies (28)

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Profile picture for jeff97 @jeff97

Carol, I'm sorry you've had PMR for so long. I've read several times that ESR and SED rate can be normal and the person still have PMR symptoms. You would think most rheumatologists would know that.

People on this forum frequently mention that they split their prednisone dose into a morning dose and another dose later in the day, and that helps lessen the pain they have first thing in the morning. For example, if you're taking 4 mg per day, you could take 3 in the morning and 1 later in the day. If you do a search on "splitting dose" there are a lot of matches.

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Replies to "Carol, I'm sorry you've had PMR for so long. I've read several times that ESR and..."

Hi Jeff, I will look into that. My previous rheumatologist said never split dose. Certainly a lot of professional opinions. I do want to stop prednisone because of the side effects. Adrenals are probably not working . Didn’t realize there can be pain from that too. Las Vegas has very limited doctors, especially specialists. It was suggested I go back to UCLA but traveling right now is not an option for me because of the physical limitations.
Thank you for your reply.
Karo