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Replies to "I have a couple thoughts to throw in, @nicolerose30. First of all, I am extremely sorry..."
thank you for all you wrote, which I found very comforting in terms of my own situation. If you are willing to share I'd love to know about the book that Mayo has recommended to you. Many thanks!
I think not getting answers for me at the five year point causes me a great deal of stress. I see a therapist and discuss the not being able to figure me out is deadly itself.
I’m a not typical case. My bowels never woke up after surgery 5 years ago. I can’t go on my own EVER. I often feel the medical professionals are scared how to diagnose me after 70+ tests. They will never say your cervical spine surgery did this or the anesthesiologist made an error.
If I wanted to get a lawyer I’m 5 years in, I would have way before now. I want someone to figure it out. I’ve asked 100 times to test my vagus nerve and it’s always no, it wouldn’t be that. I’ve said how about adding in a neurologist to the pool of docs and again, no need.
I’m not sure anyone will say or try something other than your only way to resolve this is a total colectomy.
Yes, doctors add stress to an already stressful nightmare. I go to the doctor, come home and dwell on his thoughts. I rest my head on the pillow and still trying to understand why they will do nothing.
Some of us are in a rock and hard place situation. I’d love to be stress free, I once was.
Get some routine blood Labs that test and assess the function of your adrenal and pituitary glands. This will give you an idea on your current cortisol levels.
Hi, thank you for responding. I agree with what you said about stress causes physical problems and physical problems cause stress, and it creates a cycle. I’ve felt that way a lot, like sometimes I’m stressed and that affects how I feel physically, and at times I don’t feel right physically and that’s caused stress.
I don’t know if I worded it right in my first post or mentioned it, but I’m definitely sleeping during the night. My problem has been towards the morning or when I start dreaming during the night, I feel like my dreams are me thinking and like I’m not sure if I’m fully asleep and dreaming. Sometimes my dreams feel like stressful thinking, or I’ll wake up feeling like I wasn’t really dreaming but thinking in a dream like state.