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Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: Sep 23 9:04am | Replies (47)
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Profile picture for andielars25 @andielars25

I have chosen not to start Cellcept. I have been following an AIP diet for almost 3 months that is supposed to help with inflammation and gut repair. My hands are still quite swollen, but I definitely feel better. I suppose I am hesitant to be on any sort of medication. I tend to be one of the people who are highly affected by medications and end up with all of the bad side effects. I suppose if I am able to find a provider that knows what they are doing I should at least try it.
I appreciate you responding.

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Replies to "I have chosen not to start Cellcept. I have been following an AIP diet for almost..."
Becky, Volunteer Mentor | @becsbuddy | Jul 2 9:47pm

@andielars25 You almost sound like you don’t trust your doctor. Have an honest talk with your doctor about your ‘fear’ of medicines. I’ve been on CellCept for about 5 years. I had 1 bad reaction, but it turned out not to be the CellCept at all! I’m also leary of drugs, but I wouldn’t be here today if it wasn’t for all these amazing drugs!
Do you think you could try and have a conversation with the doctor or maybe a pharmacist?

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shiprock | @shiprock | Jul 3 6:41am

I have followed the AIP diet since 2014 and it has been a life saver for me. I strongly encourage you to stick with it. Most people can't so hang in there. I am now able to maintain my inflammation levels CRP's 3-4 range) so that I have managed to not take inflammation controlling medications like Prednisone. Like you, I am very sensitive to drugs and hope to postpone taking them until it's absolutely necessary. I was misdiagnosed in 2011 with RA, drug Orencia can me breast cancer, 2013 correct diagnosis from Mayo MN of Primary Sjogrens with extra glandular manifestations (EGM), kidney disease 2018, open heart surgery 2023, age 73. I walk 5-miles a week and work in my garden and in 2020 adjusted the AIP diet to a vegetarian one to help control my kidney disease. Good luck to you and control your inflammation; that the key. Everyone makes their own health choices so stay strong and choose what works best for you.

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