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← Return to Prolia vs. Evenity
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Hi @bayhorse. I changed my insurance, and the doctor who prescribed Evenity and then Tymlos doesn't accept my current plan and wouldn't take private pay. His plan was to have me on Tymlos for two years. Towards the end of the year on Tymlos, I went to see my endocrinologist and he freaked out and then prescribed Prolia. I was very confused and started researching and that's how I ended up here. I also had a pending appointment with my rheumatologist who focuses on autoimmune disorders to find out if he might prescribe Tymlos. Then I started looking for a new doctor, found two possibilities that appealed to me and called one. The woman who answered the phone has worked in this office for a long time, and she listened to my story. She said she would talk to the doctor immediately and call me back. I was stunned when I got an appointment the next day. So, truly I just got lucky.
You've certainly been given a challenge and your endo and rheumatologist are not cutting it when it comes to your treatment. I truly empathize with your stressing out about it. Have you searched for "metabolic bone specialist" in Texas? How about this?: Bone Health & Osteoporosis Foundation
https://www.bonehealthandosteoporosis.org/find-a-professional/
Have you looked on this site for suggestions on how to find a new doctor? You could also just start a new thread here.
You're obviously a very strong, resilient and capable person. I hope you remember that every day. Sometimes we need to get fired up, and sometimes we need to accept less than ideal and move forward. You may let go of the idea that you will rapidly deteriorate and fall apart if you don't start the right medication at the right time. You may get lucky like me.
Wishing you all the best moving forward!
Replies to "Hi @bayhorse. I changed my insurance, and the doctor who prescribed Evenity and then Tymlos doesn't..."
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Hi, @hollygs, and funny you should mention searching "metabolic bone specialists Texas," as I did that yesterday and it turned up the usual lists of university clinics and endocrinologists but lead to no physician who is specializing in osteoporosis except for 1 endo in Houston. And I have my doubts about the degree to which she is specializing. I called her office; she won't do telemedicine with a new patient and is booked out until June 2026. I booked an appointment anyhow, just in case I need something down the road. Also tried the Osteoporosis Foundation site about a year ago, didn't get much of anywhere. But maybe I need to start telling my story when I find a possible candidate.
I woke up 4 times last night worrying about this situation. I was appalled by things my endo either didn't know (for example that people were losing bone on Reclast after Prolia and some needed multiple Reclast injections in the first year) or had no curiosity about (like current cardiac event stats for Evenity, which I'm still trying to find). Here's the big irony: my long-ago menopause doc has been Amgen's research director for both Prolia & Evenity, and while she can't treat or advise me (no longer in clinical practice, etc.), she was kind enough to offer to speak to my docs if they had questions. Neither my rheumy or my endo had any interest in talking to her. I have since messaged my cardio asking if he can find another heart guy with some knowledge/experience with Evenity, but have little hope of getting him engaged. Everyone is just too damn busy.
I want you to know how much I appreciate your kindness, your advice, and your search suggestions. I'm going to give both resources another try. And I think I will post to this group and the cardio group re: searching for doctors. But meantime, please accept my gratitude. You're really helping me calm down! 🙂