@pediatrixjlr I forgot to add one thing….. you need to be your own advocate.
Before I had my first appointment at the Mayo Clinic, I had my local doctor perform an x-ray, MRI, and CAT scan and then sent all the imaging to the Mayo Clinic so the surgeon could review it prior to my appointment.
I know each case is different and what you and your son are going through is completely different than what I’m going through, I just want to stress that it’s OK for you to ask questions and if you do research, you can request tests. All they can do is say yes or no.