Connect
← Return to Finished Antibiotic Treatment - On to Airway Clearance
Discussion
Finished Antibiotic Treatment - On to Airway Clearance
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (30)Comment receiving replies
Miriam, I am so happy to hear you have been through the treatment and are
Doing well. I was dx with MAC and so scared but I’m
Thinking of going head and taking the meds in hopes to rid this from my body. I hope and pray I can make it through the treatment. Any advise such as eating etc would be greatly appreciated. I am in NC.
Replies to "Miriam, I am so happy to hear you have been through the treatment and are Doing..."
Shelly i am in SC and getting ready to start. I feel the same way as you. I am so nervous but so want to try to see if I can get this cleared up. Good luck to you!
@shelly61
For me the meds were hard on my stomach. I tried to take them at night. I think refampin was the worts for me i took at night. Also had food when i took them. I hope and pray for you that it works. For me in the end after 18 month the mac is still there. I chose to stop treatments. I now do saline and have ct once a year. Do have a few flair ups but nothing i cant handle. I walk and take care of myself and i am managing the mac. It hasn’t gotten worst so that is a good thing. If have anymore questions pls ask. Miriam
Connect
Hi! Will try to give you my thoughts about this treatment. It was not easy but i made it for 18 months.
For me the stomach issues were the hardest to deal with because i have gerd. I tried different ways to take the pills. I always had to eat something. It turned out that rifampin gave me lupus so it was changed. I guess i was allergic to it. When i went to denver to natl jewish hospital they said rifampin can cause the lupus. I had terrible pains in my legs. After i stopped the rifampin it went away. They replaced it with clofazimine.
I started the airway clearance with the 7% saline. My pulmonologist wanted me to do it twice a day. I am going to be honest i find it very hard to do that. Once a day is hard for me. I try but i am not very good. I have ct scans now once a year and the bronchiectasis and mac are still in my lungs. Doctor says it hasn’t gotten worst. So i do get checked. Haven’t had a sputum test in awhile last year i had 2 they were negative. Probably should have one soon. Would i do the treatment again probably not. If new meds with better results were available i would think about it. I hope you do well with the treatment. It does reduce the symptoms. If you have more questions please ask me. Its nice to hear others who have the same disease and how they are doing. God Bless. Miriam