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← Return to Prolia vs. Evenity
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@hollygs, thank you once again for your kind response. I am having a heck of a time finding an expert anywhere in the whole state of Texas who is not booked through June of 2026 where new patients are concerned. Were you an established patient with the wonderful doc who gave you a quick video visit? Some I've contacted won't do telemedicine with a new patient, and if you were a new patient with this doc, please tell me how you convinced him to see you! 🙂
I am stressing something awful over this, which I know is so counterproductive and unhealthy. Today, the endo who originally said she'd prescribe Evenity backed off from that, and my rheumatologist is discouraging me as well. They will give it to me if I truly want it, but at the same time keep telling me "the standard of care is NOT to prescribe Evenity to anyone with a cardiac issue." When I bring up the contradictory study results (re: cardiac events with Evenity), they acknowledge them. But because the "standard of care" rules have not officially changed, I am being left on my own to choose. Enormously stressful and frightening
I am considering doing what they would like -- a Prolia injection -- just to buy myself some time to find a real expert. But am not happy about that at all.
In any case, thank you for listening to all this, and thank you for understanding what a rough go this can be! I wish you all good health! 🙂
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I live in Lucas, Texas, in the Dallas metroplex. I needed an expert on osteoporosis as I had a T-score of -4.7. I heard a podcast with Dr. Keith McCormick in 2022 and was so impressed we booked a trip to Massachusetts to consult with him. (He also does phone consultations after receiving all the test results he. needs). He developed osteoporosis at age 45 in one hip after being an athlete all his life. He plunged into the study of the condition and had many recommendations. I had not taken any medication in the 20 years since I was diagnosed. The first thing he said to me was I had no choice, but to go on medication. He said Tymlos was best since it produced better results than others. I trusted him and followed his plan for me. I did the Tymlos injections for two years and went from -4.7 to -3.8. I was very pleased with the gain in bone. I have now started Evenity injections for one year and will next do what Dr. McCormick recommends. He has written two books. The first, which I have, is "The Whole Body Approach to Osteoporosis". I have not read his 2nd book "Great Bones". The more you read and learn about osteoporosis, the better your decisions.
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Hi @bayhorse. I changed my insurance, and the doctor who prescribed Evenity and then Tymlos doesn't accept my current plan and wouldn't take private pay. His plan was to have me on Tymlos for two years. Towards the end of the year on Tymlos, I went to see my endocrinologist and he freaked out and then prescribed Prolia. I was very confused and started researching and that's how I ended up here. I also had a pending appointment with my rheumatologist who focuses on autoimmune disorders to find out if he might prescribe Tymlos. Then I started looking for a new doctor, found two possibilities that appealed to me and called one. The woman who answered the phone has worked in this office for a long time, and she listened to my story. She said she would talk to the doctor immediately and call me back. I was stunned when I got an appointment the next day. So, truly I just got lucky.
You've certainly been given a challenge and your endo and rheumatologist are not cutting it when it comes to your treatment. I truly empathize with your stressing out about it. Have you searched for "metabolic bone specialist" in Texas? How about this?: Bone Health & Osteoporosis Foundation
https://www.bonehealthandosteoporosis.org/find-a-professional/
Have you looked on this site for suggestions on how to find a new doctor? You could also just start a new thread here.
You're obviously a very strong, resilient and capable person. I hope you remember that every day. Sometimes we need to get fired up, and sometimes we need to accept less than ideal and move forward. You may let go of the idea that you will rapidly deteriorate and fall apart if you don't start the right medication at the right time. You may get lucky like me.
Wishing you all the best moving forward!