@seanne, I want to extend a heartfelt Welcome to Mayo Connect. I am happy that you have entered this discussion. I had a brief stay in ICU and my memory gap is my bothersome symptom. Nine years ago I was critical with failing liver (on transplant list) and acute kidney failure. It was a very painful time for my family and even to this day, they do not want to speak of it. I had to sit them down and to ask what happened during my times of 'unknowing' . So for me, it has helped to meet others who understand that 'need to know, and to understand what was going on'.
I never thought if it as PICU, but when reading the experiences of others, I have learned that me and my family were affected. I am at loss as to what to say about your experience that might be helpful to you, except to say, "I understand what you are experiencing, and I understand the fear with the unknowing".

I want to share this resource with you where you can learn more about Post Intensive Care Syndrome (PICS).
https://connect.mayoclinic.org/page/pics/
Did you know that there is a Discussion Group - Epilepsy and Seizures that might be interesting. https://connect.mayoclinic.org/group/epilepsy-2bb359/

I will wait with you, and I am happy to chat with you while waiting for others to share their experiences.
Hugs,
Rosemary