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@pmmar1

Hello,
I am 80 years old and was diagnosed with MAC/Bronchiectasis two years ago and am a patient at NJH. I tried the Big 3 last year and after 6 weeks decided I wanted quality rather than quantity of life. The drugs made me feel worse than the actual diseases. I have hemoptysis and a fungal infection too.

Every 6 months I visit my doctor at NJH and my last visit showed my MAC to be stable but the fungus has worsened -- but I wouldn't know it otherwise. I have discussed with my doctor my decision to "let nature takes its path," which just means all of us will most likely die with the disease as opposed to dying of it, whether we are treated or not.

I have decided to enjoy my life. I use the Aerobika twice a day (no saline or other as they cause my hemoptysis), walk 1-2 miles daily, have been on a Mediterranean diet for 20+ years, and spend my days learning new skills Adobe provides for me through their Illustrator. I read a lot and have authored a children's book, write poetry and prose, and am enjoying other art creations.

In other words, I keep busy and refuse to let the diseases prevent me from enjoying my life. My mother lived to 101 and my father to 96, although neither had these diseases. I will attempt to add more years to my life -- with the understanding that pneumonia or Covid or other lung related viruses may prevent me from doing so.

Each of us can make decisions we feel is best for our own quality of life, and I wish you the best as you make your own decision(s) moving forward!

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Replies to "Hello, I am 80 years old and was diagnosed with MAC/Bronchiectasis two years ago and am..."

Brava! Brava! Brava! You are the first person I have "met" who is choosing this path. I certainly don't have your eating history, but I eat healthily and my spouse is a chef by training. Yay! You sure are doing all the right things for longevity and quality of life. Keep on keeping on! Check in once in a while so I continue to know there is someone else out on the limb of the tree working all the angles hoping to delay when the limb might snap and fall. Good luck! Thank you! Nancy

I also want to enjoy what time I have. I am 74 years and was told that the treatment was worse than the disease. That even by taking the medication your chance of getting rid of it was slim. I was diagnosed with MAI and bronchiectasis four years ago. Walk 5 miles every morning and twice a day airway clearance with a vest. So far doing good. Don’t want the medication treatment because it would make my health worse. This is my choice and the doctors actually agree with me . So I know everyone has their own story but I decided to Watch and Wait and it has worked out for me so far.