@smithpamelag I know it must be so difficult for you and your husband right now. As @craigcraig mentioned, being seen at Cleveland Clinic is a real plus!

One thing I can really and truthfully say, is to make sure your different specialists are conferring with each other. That's critical, as you make decisions in the near future, for treatments. You haven't mentioned the primary cause for your husband's CKD, so everything will need to be taken into consideration. What is his eGFR at this point? My oncologist and nephrologist are in regular communication to team with me and make the best choices for treatment. BTW, I am on daily dialysis for kidney failure, and under treatment for multiple myeloma [one is not connected to the other].

As for his poor/no appetite, small meals often may work. Protein-rich like a egg, or some Greek yogurt, or a protein smoothie might appeal to him? I make my own smoothies with mixed fruit, almond milk, Greek yogurt, and protein powder. At some point, it's going to be "whatever appeals to you right now", and that's okay too, dietary guidelines be darned!