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Profile picture for Rene Utianski @rlu0817

Thanks for your thoughtful post and sharing about writing your memoir- what a beautiful gift! Are there any resources or tools that have been especially helpful as you've navigated this diagnosis? Or information you're searching for that you haven't found?

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Replies to "Thanks for your thoughtful post and sharing about writing your memoir- what a beautiful gift! Are..."

Finding the right neurologist--one who specializes in neurodegenerative disorders--was key. Mayo Clinic resources have been useful, as has the PPAOS Friends virtual support group run by Jackie Hurst out of Brooks Rehab in Florida.