Hi,
Wondering how you are feeling + if you’ve received a diagnosis?

I am 67 w/ similar symptoms. Was diagnosed w/ MS in 2021, following a 3 1/2 yr diagnostic odyssey. After consulting 3 neurologists, numerous specialists, extensive testing … it was actually a 90° day + experiencing significant difficulty moving my legs that led to a brain MRI, lumbar puncture + blood tests and an MS Dx at Mayo AZ. Hindsight, it’s suspected I had transverse myelitis in 2017 when tingling started in my toes and over weeks elevated to my waist. At the time I tested deficient Vitamin D + very low B12, so I started oral D + B12 injections. As tingling lowered to just my feet, I assumed B 12 was helping. Later I learned it was due to relaxing remitting MS.

I’m familiar with Mayo neurologist Dr. Eoin P. Flanagan … with whom I’m assuming you’re consulting? Dr Flanagan is a highly knowledgeable neurologist and is very knowledgeable about MS, transverse myelitis, myelopathy, and many other neurological diseases.

If by chance you are still undiagnosed … Mayo does have diagnostic odyssey programs that can sometimes help with the diagnosis of rare conditions.

In my case, I was initially told
1) I had peripheral neuropathy, due to 5.6 A1c
2) I need to stop thinking so much about how I felt
3) I needed to stop seeing so many doctors
4) my symptoms were likely due to lack of sleep, and my mother passing away
But in fairness, these diagnoses were far more likely for a 63 yr old female … only 2% of people diagnosed with MS are diagnosed after age 60.

I’d love to hear from you + am here if I can be of support,