← Return to Liver transplant and CKD, now husband diagnosed with pancreatic cancer

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Hi @smithpamelag
Our story (short version) :), is the wife was diagnosed with NETs April 2022, 9 cycles of CAP/TEM, Surgery to remove primary on pancreas, ablation on liver as much as they get, remove spleen, and gall blader. Moved to PRRT treatments to try to get the rest, and we are looking good, but NET's is still in the liver. Presented by Medical team an option for a Liver Transplant, to try to isolate and hopefully get all of the NET's out of body, with transplant. Although, we understand there is no guarantees. Had transplant in January 2025, and it has been very tough on her, with multiple returns to hospital, additional surgeries. The moral to our story is to keep fighting this cancer, have a good medical team that you trust, and we are here to talk to with any questions and we will try to share our experiences if that will help you and your husband. You both got this, and we all got you!

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Replies to "Hi @smithpamelag Our story (short version) :), is the wife was diagnosed with NETs April 2022,..."

Thanks for sharing your story @kim1965 - I'm not familiar with acronym NET. The medical field is full of them isn't it. My husband had cholangiocarcenoma (bile duct cancer) in 2020, his liver transplant was Feb 2021. It hasn't been an easy road that's for sure. He also had shingles Jan 2024 and is left with the nerve pain since then so the constant pain definitely wears on him. I'm concerned he doesn't have a lot of fight left in him to battle this. I told him the other day that I've been through it with him before and we will battle this again. Our son had testicular cancer a year ago as well, so feel like we're on repeat - here we go again...although this feels like it will be a much longer battle.