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Liver transplant and Neuroendocrine Carcinoma
Neuroendocrine Tumors (NETs) | Last Active: Jul 4, 2025 | Replies (17)Comment receiving replies
I am very interested in this as I am in a similar situation. I’m in a NEC support group and some people are doing well on immunotherapy treatments. While I’ve seen some indications that it is possible post liver transplant, it is more risky and hard to find available treatments. Many trials exclude solid organ transplant recipients.
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Yeah I had a second opinion at MD Anderson in Houston and they said I wouldn’t qualify for clinical trials due to having a liver transplant. I was told to find a doctor that specializes in liver transplants AND NEC so we think we found the doctor I need at Dana Farber in Boston. We are heading there in September so hopefully they have better answers. It’s been so hard to find that kind of doctor