I'm sorry you have had such a struggle, both with pain and with the knowledge that it can't be cured.
I start chemo and a clinical trial next week. I am stage 4 metastatic to liver and surrounding lymph nodes. I had pain at first and have been living pain free for about 6 weeks. There is no reason for it, but I take every day like this as a gift.
I asked my doctor the same question as to how long I have. She said it is a very individual answer and would not give me a timeline other than to say 6 months if I did nothing. At first, I was a bit miffed that I didn't get a number. But, now having had time to reflect on it, I think I like it this way. Instead of being given a number to aim for, I now have the choice to go on as far as I want.
Having lost a nephew to a car accident, I can say that while it won't be painless for me and for my family, I have the luxury of making sure I am right in this world and everyone in it. I need to be generous with forgiveness and on asking to be forgiven. I watched the biography of Michael J. Fox and a quote has always stuck with me, "With gratitude, optimism is sustainable". I choose to be grateful for as much as I can every day.
I hope this doesn't sound preachy. I maybe have no basis for posting as I have not gone through the chemo yet. I know what my pancan sponsor told me and that was that those that do the best get up even when every part of their body says stay down. I want to be here to hold future grandkids! I wish you only the best. Brad
Please ask them to give you something for the pain. There should be no reason why you are in pain. I also have Oxicodone just in case. I did go just for blood work last week and platelets are now down to only 40. Tomorrow I go for more blood and if the plaetlets are below 78 the will cancel the chemo and start devising something that will not attack the bone marrow that is producing the platelets. I am not afraid of death, nor am I religious, but I know there is something or someone up there who will guide me when the time comes. I wish you well and just listen, listen to you body and speak out.