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Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: Jul 2 4:03pm | Replies (140)

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Profile picture for moglena @moglena

I don't mean to scare anyone. I was diagnosed with a thymoma in February of 2023. Surgery on May 12, 2023. I was told it would be a robotic surgery, only being out of work for 3 weeks. I woke up with tubes all over me, a gash a foot long in my back shoulder area, right below my shoulder blade, with tubes coming out of it, and missing half a lung, along with nerves cut. I've been in pain ever since. The pain is constant and unbearable. What was suggested by one Pain Center, and a 2nd opinion a 3-hour drive away, my insurance will not cover what they suggested. I went through radiation, got shingles, got pneumonia, unbearable nerve pain for over 2 years now. Having regular CT or PAT scans. Oh yeah, shingles reoccurred, and another trip to ER with pneumonia. I was a hefty 145 lbs. at 5'2", I'm now trying to maintain 94-95 lbs. It's just hard to have an appetite with all the pain. I go to Mayo Clinic tomorrow and am praying so hard they can help me. I'm excited, but hard to hold out hope right now. I'm accepting all the prayers I can get.

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Replies to "I don't mean to scare anyone. I was diagnosed with a thymoma in February of 2023...."

I am sending prayers to you. All I can say take one day at a time. I know it’s a redundant statement but it helps me when I am upset.