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I'm conflicted

Prostate Cancer | Last Active: Jul 2 9:13am | Replies (25)

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I had 42 sessions of IMRT, Nine months after treatment I developed chronic radiation proctitis. It has changed my diet and for a period of 1 1/2 years it limited my daily activity. My urologist told me I could not get the barrier gel because of the location of a metastasis very near the outside of my colon. I would have liked to have skipped the whole radiation proctitis disease and now my gastroenterologist says I'm at risk for colo-rectal cancer.

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Replies to "I had 42 sessions of IMRT, Nine months after treatment I developed chronic radiation proctitis. It..."

@ededed Am I reading correctly that your IMRT was without the barrier gel? And this put you at risk of colo-tectal cancer?
I ask because (a) I had mucus and traces of blood in my bowel for a few days post-SBRT; and I had no more side effects to report the next two months, but (b) you were okey for nine months then developed chronic tadiation proctitis. (c ) This struck me as a red flag, that maybe it's too early for me to celebrate, I have to see what happens the next seven months, if my bleeding mine weeks ago don't come back as proctitis. I hope not.
Anybody here who had SBRT or IMRT over a year ago, without a spacer between the prostate and the rectal area, but didn't develop proctitis?
Will appreciate hearing from you.
Vir

Same here, Ed. I did not have metastasis per se, but RO said that cells ‘could’ be in the area and he wanted to treat them as well.
He assured me that he would be able to ‘shape’ the beam to go around the rectum ( don’t ask me how you can do that with photons) so I went ahead with his recommendation.
Every one of my 25 sessions had a cone beam Xray to verify the position of the rectum and verify that it was in the same position as for the simulation visit. Only time will tell!
Phil