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No testosterone on Lupron, can I build muscle strength by working out?
Prostate Cancer | Last Active: Jun 30 11:14am | Replies (38)Comment receiving replies
I count myself lucky for two reasons, one is my cancer was mostly G6 with one core upgraded to G7 upon a second opinion (slide sent to Johns Hopkins)
Second, I choose to remain on testosterone replacement throughout and almost 4 years post SBRT, my PSA is 0.06
My family doc and urologist's all decided to stop my prescriptions for T even though my testosterone level fell to 25 after stopping TRT
I felt like Sh--! I can deal with weight gain muscle loss and loss of power but the extreme anxiety and profound sadness was too much for me. I was crying at the drop of a hat or any silly sad commercials and would fly off the handle with anger at times.
I found a clinic some miles away and withheld my Pca diagnosis
Yes I told my oncologist and family doctor, urologist's etc.. but not the clinic doctor.
So bottom line is maybe I dodged a bullet and I am not suggesting this for others but I am doing just fine and am glad I took the chance.
Again my Pca was lower risk then many others and please listen to your team as well as use common sense-only you can assess the risk benefit
Glen
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In a couple months, it will be one year since I stopped Orgovyx and my testosterone is dropping instead of going back up. My urologist is very cavalier about it, saying it happens sometimes and that I may have testicular failure but that TRT is 100% off the table. 3 months after stopping I was in the mid-300s which I thought was a good sign, six month test I'd dropped to high 200s, nine month test I'm in the low 200s.
I'm reaching the point where I'm starting to have some of the effects I had while on ADT and this is fueling unbelievable anxiety since I generally found the whole ADT experience to be extremely traumatic.
My pre-treatment T was in the 500s and now it's in the low 200s and falling. I, too, am thinking about going to an endocrinologist and not telling them of my PCA diagnosis either. But I am going to wait the full year to see what happens. My only fear is my cancer center will quickly figure out I'm doing this if my T jumps from the low 200s into the 500s and drop me.