I completed 5 rounds of cyberknife for my parasagittal meningioma. I am wondering why they are suggesting radiation when they had a complete removal? I would definitely get a second opinion nd possibly just monitor via mri. I know a lot of people in the radiation equipment business and did a very deep dive to determine proton vs photon. Bottom line is proton requires many more sessions and the cyber knife (photon) is the most used and studied. I had an incomplete surgical removal which slowly grew over 3 years. My surgeon at Hopkins suggested radiation. Got a second opinion from Georgetown and a third from a radiation oncologist friend from Sloan Kettering. All 3 recommended photon.
I had to take Ativan 2 hours before every 29 minute treatment to tolerate the mask. Much easier than anticipated and had no immediate side effects until this past week when my hair started falling out in very big clumps. This was one week after final treatment. Top of the head but much larger area than I expected. Hoping it will grow back.
I had no symptoms when they recommended radiation so this was a difficult decision. In hindsight I should have had it operated on much sooner when they could have possibly gotten it all out. Apparently partial surgery sometimes makes the remaining tumor grow especially in this area due to high blood flow. They anticipated being able to get it all but when he opened me up it was stuck to the dura. Good luck! Not sure I would rush into radiation if I were you….kim