← Return to Newly diagnosed invasive ductal and lobular in right breast

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I certainly have gone down rabbit holes. Have found ChatGPT very helpful. Log in with Apple or google ID. DCIS 22 yr ago L breast. Couldn’t get clear margins so mastectomy. Negative nodes. Declined tamoxifen. Fluke bilateral MRI in April. IDC in L breast again. Lumpectomy and removal of implant in 2 weeks. Oncotype score was 13. Refusing AIs. Will try very low dose tamoxifen I think. Radiation is my rabbit hole. Close enough to heart. Haven’t met with radiologist yet. I am so grateful I made it this far. 70 years now. Looking at proton radiation if it’s recommended. Will have to travel. No guarantee insurance will pay. Ready to get this going. Long 3 months

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My sister just told me about proton radiation. If I remember correctly, she said that Mayo in Arizona provides that. Insurance is a nightmare - wish everything would be covered. I have chronic pain and had made the decision to leave my job and apply for long-term disability with the goal of getting a handle on my chronic pain when I got my cancer diagnosis. Huge leap of faith because I am the one with the benefits, my husband does not have any. Here I was thinking I was going to be giving my body the rest it so desperately needed only to find out I need to gear up for battle. Grrrr!