← Return to Recently Diagnosed PMR Disease Progression

Discussion
Comment receiving replies
Profile picture for sbtheplumber1 @sbtheplumber1

I went to the ER Wednesday they ran a bunch of bloodwork, Glaucoma test and done a CT which showed negative for GCA, seeing a Choridal Fissure Cyst on my brain they were concerned ( I’ve had it for 30+years) so more bloodwork and an MRI the next day it’s not the cyst but headaches keep happening , medicine list totally screwed up and I was bragged upon for a printout of all my medical , They tried giving me a blood pressure pill that changed last year I switched to a different one they tried giving them both and the wrong dose of my new pill and when told I take mine in the morning they changed it but still tried giving both the next morning. I’m still scheduled for head/neck soft tissue ultrasound Tuesday . They tried imitrax for migraine(single and double dose , prednisone , doubled Methocarbamol from 650 at bed to 1500mg 3x a day, hydrocodone, tramadol, Tylenol. Nothing helped I have a pinched nerve I believe at C2 and another going both directions C4/5 or C5/6 and C6/7 spinal starting to pinch plus bulging disc. I leaned my head to the side and felt the pain so I’m thinking it’s pulling on my neck . I kept slightly swelling at night on my right temple and a headache when getting up sometimes both sides. I also had the stimulator put in in January then redone April 8 and readjusted a week before headache. I’m wondering as well about the stimulator causing it after reading about leads moving and paddles not helping
My leads moved and I had them replaced with paddles that’s not working right yet.

Jump to this post


Replies to "I went to the ER Wednesday they ran a bunch of bloodwork, Glaucoma test and done..."

I had a CT of my Lumbar that’s screwed up a week ago Friday notified the surgeon last Monday and he’s still not called back . He said they’re done with my lumbar that’s what the stimulator is for that doesn’t fully work yet. So my PCP ordered the MRI and he looked at it and saw Narrow Edema and then decided to order the CT to look at the hardware. Hope I’m the only one having so much runaround with Nerdosurgeons!

I thought that blood tests & a biopsy were really the definitive measure for GCA. The SED rate is what the doctors look at. Are you still having jaw issues? If so, I would suspect GCA.