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Side effects of prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Jul 2 7:57am | Replies (23)

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Profile picture for petermccarville @petermccarville

Good analogy with the gas pedal. My taper plan is to follow the most common one but we will see how that goes. Another 2-3 weeks on 10 mg will give me a month on it and then I will taper to 9 mg for a month and so on into the single digits. Hopefully I can do a mg per month. Time will tell. I am following the tapering plan that is considered the international protocal set in 2015 but as we all know that is highly variable. No flares as of yet for me but some soreness and stiffness at quite a low level is common according to folks on this chat room who have responded to my question of "just what constitutes a flare?" I pretty much have hurt in some fashion or location on my body my entire life. I have EDS (Ehlers Danlos Syndrome). Not a "bad" case of it but it has informed most of my pain quotient my entire life, I now realize. Currently my pain is not too much to worry about and is below a level one. I am just highly sensitive (aware) of what my body is doing at any given moment. I will remember fondly the first month of being on 15 mg (my start dose). Amazing! I have never felt that good in my life. I could do any amount of work or activity and not have a lick of soreness or stiffness during or after.

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Replies to "Good analogy with the gas pedal. My taper plan is to follow the most common one..."

I followed your taper plan. had a flare at 6 that sent me back to 8 or 9. All in it took me just about one year to finish. Near the end my rheum put me on my final 1mg taper at every other day for the final two weeks because my blood test showed excellent (low) inflammation levels. I finished a week ago and feel better now that I am off the prednisone . And I have resumed coffee at half a cup per day. Actually feeling pretty darn good. Cheers.