@saw2019
When I was 30 I had a virus with high fever, rashes, swollen knees. This was followed by 6 weeks of absolute fatigue, I could do nothing. I almost lost my job as an RN. From that time on, I felt chronically ill. All those symptoms plus swollen glands, exhaustion, did I say exhaustion?(!) Okay, my life changed forever. I had a positive ANA, low complement levels. The next time a doctor ordered labs, maybe the ANA was negative.
What I learned is that no doctor believed I was ill without positive ANA. It wasn't until 15 years of that (and I never worked again) that I met a rheumatologist who told me there was now a test (Citrulline) that showed I already had bone erosion from rheumatoid arthritis. So, I got a diagnosis of Seronegative RA.
I have now been affirmed that I had Undifferentiated Connective Tissue Disease at first. I have autoimmune antibodies to thyroid; Hashimoto's Thyroiditis. I have Secondary Sjogrens Syndrome (but had the symptoms at 30). Autoimmune diagnosis seems to depend on labs until a certain point and voila! you are considered ill and not making it up in your head.
I went to a prestigious hospital medical center and they told me that all I needed was meditation. I looked at the doctors and told them , I have been meditating for 20 years and THEN I got ill.
I think I'm writing different things that come to mind because it is a very frustrating thing not to find answers, not to be taken seriously. I really hope things have improved for people today. I hope you find your healthiest life with autoimmune illness.
I was diagnosed 50 years ago with System Lupus. In the 50 years I've only had 4 positive ANA titer tests yet I've had many flareups during that time - some very severe. I don't see medical doctors anymore - not for 20 years. I do holistic, naturopathic and Asian medicine - it has saved my life. I went to the Mayo Clinic in 1998, and after 2 weeks of testing, etc. they told me to stay away from the medical community unless it was an emergency, they told me to go all holistic, eat clean and take good care of myself. They said the doctors would kill me trying to save me. I took their advice, and while I have occasional flareups, they are few and far between. I eat all organic, do liver and kidney cleanses every 90 days and take supplements. 2 years ago I ended up in the ER with high blood pressure from a flareup - the doctor insisted I had kidney damage because first of all, no one lives 50 years with lupus, and second of all since I have there is organ damage. I made him run the tests while I was there, and he came back in and said he couldn't believe that all my tests were normal - he called them beautiful. There's a lot to be said for holistic- I'm living proof. I hope this helps.