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Newly diagnosed and confused over treatment for lichen sclerosus
Autoimmune Diseases | Last Active: Aug 9 10:57am | Replies (114)Comment receiving replies
Yes, I've had flares just inside vagina so very painful, that's where mine flares up most often I've also had tears in perineum that takes weeks to heal. I have felt so alone in my suffering over the years that I know it has changed me as a person because unless you have this condition you can't imagine the pain and the itching it brings. Every time I get a flare, I feel defeated and worn out.
Replies to "Yes, I've had flares just inside vagina so very painful, that's where mine flares up most..."
You really capture the feelings that have gone along with LS for me. I have Sjogrens Syndrome, many years, and thought it was dryness, itching from that. When I checked with my gynecologist, she told me these were "fissures" not just dryness. I felt discouraged and except for this forum, no one! wants to hear about a vulvar condition. I have other autoimmune, am a cancer survivor, but this is awful.
"Every time I get a flare, I feel defeated and worn out." I'm sorry for your suffering. Because you shared this, I feel less isolated. Thanks!
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I’m still in a flare (tail end of..i think) but my steroid is helping. I have 3 different ones that she has prescribed (over the years) . Desonide, hydrocortisone Valerate, and betamethazone. The betamethazone works but burns because it’s stronger. I prefer hydrocortisone valerate. People have mentioned rubbing it in for about 90 seconds. As crazy as that sounds, I have noticed such a difference with that. I also take about two-three showers a day where I rinse off down there with just water and that really helps and I’ve also taken an Epsom salt baths, and that helps as well. There are times when I’m still on fire and I just stick an ice pack between my legs and that really really helps and keeps me comfortable for the rest of the day. I don’t wear underwear I wear loose boxers or really thin pajama pants. But I try not to wear tight fitting clothing, especially when it’s really hot outside. I feel for you. I really truly do. My heart breaks for anyone that is suffering from this horrible condition and people that don’t have it just don’t understand. Another thing I want to mention, which is just something that I thought of the other day is maybe try getting a squirt bottle or even one of those bottles that you squeeze and the water comes out and after you go to the bathroom Rinse the urine off down there. I think the urine is acidic and it aggravates the LS area. Keeping Vaseline on as a barrier helps. Also… I take Claritin to help control it.
Sending healing blessings ❤️🩹