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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: 12 minutes ago | Replies (1188)

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@njed

Jake, well my friend and fellow victim of epilepsy, there is nothing wrong with your memory. Wow! I do recall making that comment about never knowing for sure, but I had to really tape my memory bank and as unfortunate as it is, there is a strong possibility we are both impacted by the meds which as of this month, I've now been on Dilantin for 53 years. No neurologist will ever agree with me that these meds could have been the cause of my PN.

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Replies to "Jake, well my friend and fellow victim of epilepsy, there is nothing wrong with your memory...."

Hi NJEd and Jake, I am part of your group with the issue of meds causing our neuropathy. Mine was probably caused by methylprednisolone which was prescribed for me by an ENT to treat my sinus infection. Only took it for two days but probably a huge mistake that I am now paying a huge price for. I must say that I have no pain--I do get a sensory feeling of weakness in my extremities which can be remedied with physical therapy. I am having some breathing issues which could be connected to autoimmunity--does anyone out there experience this. My PCP said my breathing was fine--he is dismissive of just about everything. I had also visited a cardiologist and he said my heart was okay after doing an EKG. The doctors never want to hear about natural remedies. There is a marriage between mds and Big Pharma. Where have all the Prell Shampoo and Secret Deodorant TV commercials gone.?Gone to Lyrica, Zymbalta everyone! By the way, I am sure the heat dome we had here in the Northeast was no walk in the park for the neuropathy crowd.