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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 33 minutes ago | Replies (1188)Comment receiving replies
@davidmoll
My 40 year battle with neuropathy most likely was caused by years of toxic effects of seizure medications. But as @njed once wisely pointed out I will never know for sure. It just seems the most likely cause. My neuropathy did progress and is considered permanent now at
stage 4. Neuropathy may stabilize or even improve.
Although my neuropathy was stable for probably 30 years it did progress to stage 4. Thats when my pain disappeared, replaced by numbness. So as far as I'm concerned, even though the progression brought on ED, bowel and bladder complications at least the horrendous pain is gone. For me, the issues from progression are easier to deal with than the pain was. I try and look at any potential progression in a positive way. Maybe it will improve more even though the doctors say otherwise. Doctors arent clairvoyant but I've had some who thought they were.
Take care,
Jake
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Jake, well my friend and fellow victim of epilepsy, there is nothing wrong with your memory. Wow! I do recall making that comment about never knowing for sure, but I had to really tape my memory bank and as unfortunate as it is, there is a strong possibility we are both impacted by the meds which as of this month, I've now been on Dilantin for 53 years. No neurologist will ever agree with me that these meds could have been the cause of my PN.