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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Sep 16 7:52pm | Replies (609)

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@chattykathy

I am so glad to meet all who have replied to my posts. When I last posted I mentioned meds that I am taking; they changed my dosage yesterday on tacro which I stated from 3.5 to 4 which was wrong, it went from 2.5 to 3 mg. Sometimes I just am confused. After I posted it and was thinking about it I realized I posted it wrong. Oh well, such is life, right..

Anyway, I am happy to join in on the discussions. I hope everyone is feeling up to par today. We went out this morning for errands and such and have just returned.

One thing I wanted to mention about my time in ICU; when I was transferred off ICU floor and back to transplant floor, I was terrified. I was not familiar with any of the staff at that time and just felt so scared. By the time I was comfortable that I would not be harmed, which was a fear of mine, the doctors discharged me to a nearby facility, our home away from home, with home health care, I began to settle down. My husband was my caregiver during all of it and, needlesstoday, he was stressed to the max.

We were bombarded with our meds and instructions all at one time and it was a lot to comprehend.

Did I mention that I am blind, visually impaired with light perception only, which made the burden heavier on my husband.

Anyway, we made it through, like I said earlier, and so blessed to be here today. I am going to get my timeline straight so I can share my journey. Until next time, CK.

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Replies to "I am so glad to meet all who have replied to my posts. When I last..."

@chattykathy, We are happy to have you here to join our discussions as well! You mention your transition out of the ICU and being terrified. This is a very common feeling as it is a whole new environment, new set of caregivers, and a new trust relationship you need to build. Is there anything you think back on that would have made the transition easier for you? Any preparation or any ICU follow-up that you think might have been helpful to ease that transition?