I just went for my yearly followup and mentioned some of my symptoms. Noone mentioned PICS to me. I am taking very few meds and everyone is amazed by this fact. My bloodwork was done on this past Monday and was normal except for tacrolemus which was 4.5 and they increased dosage to 3 mg twice a day. I was on 3.5 mg twice daily for a couple of years. I take metoprolol and CellCept along with prednisone. Other than that, only supplements and daily vitamins.
My journey has been a long and complicated one. I want to share it with the group, but it is a long story. I am wondering if it is to long for this forum.
My story involves the time leading to transplant, recovery in ICU with another surgery 3 weeks out from transplant, readmission after discharge to home, and another surgery 2 years out from surgery for revision of bile duct.

I have had an amazing journey with support from family, friends, and people I do not know along with all the medical staff that has cared for me over the past 5+ years. I am truly blessed to be alive and hope my story helps others. I am so glad to have found this forum.

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