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Shocking REMS score!

Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (14)

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Hello all,
I’ve never heard of REMS — how can scores be SO different from DEXA?
I’m having a decision crisis and would be grateful for any thoughts or advice.
Have been on an aromatase inhibitor (post early stage breast cancer lumpectomy and radiation) for 18 months. This med is rapidly worsening my T scores (& bone quality) — started at lumbar 3.3 and o osteopenic at hip and femoral neck, now 3.9 lumbar and osteoporosis elsewhere —and my bone specialist endocrinologist is recommending 3years of Prolia while I complete the 5 year course of cancer med, then a year of Evenity. Then probably more bisphosphonates to maintain. I’m only 63 and terrified of beginning a lifelong course of potent bone meds that will stop my body’s own bone resorption/regeneration process forever. Considering going off m cancer med, which would increase my breast cancer recurrence but possibly allow me to maybe start with Reclast and stop losing bone density. I eat well, exercise, supplements for 20+ years, etc. What’s the least awful choice here..? 🙁

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