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Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Nov 14, 2023 | Replies (597)

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@andreab

@chattykathy I am happy you found our conversation. Are there symptoms in particular that you have questions about? I also want to make sure you have seen our Page at https://connect.mayoclinic.org/page/pics/

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Replies to "@chattykathy I am happy you found our conversation. Are there symptoms in particular that you have..."

Yes, I have seen some of the posts and hope it was the right page. I am really not sure as I just came upon a post about PICS. I did register and login. I received e/mail notices this morning and read them and went to the connect page and logged in. My symptoms are a sensation like my insides are quivering at times, not all the time. I have vivid dreams, not really nightmares, like a movie I am watching which is strange as I am considered blind as I only have light perception vision. I have stiffness and walk like a zombie when I first arise in the morning and sometimes throughout the day when I stand from seated position. A wave of pain, at times, when I first go to bed that starts in the lower back region, tailbone, and settles underneath my jaws on both sides then stops. This sensation does not happen often but, when it does, it makes my whole body pulsate. This is the best way I can describe the symptoms.Does this make sense and related to PICS. I had a long stay in ICU after my double transplant, 5-7 weeks, then 2 weeks at a nearby room outside hospital before traveling home. I was readmitted about a month later with an infection which was only a few days, not in ICU. It took about 2 years for my recovery and am doing well now except for above-stated symptoms. Although, I am able to live with them and very thankful to be alive.