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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Aug 15 1:13pm | Replies (1207)Comment receiving replies
@arcuri24 I think the non-diabetic group of us with PN is substantial. In 2019, I was so convinced that my PN was related to lower back issues, I was able to schedule an appointment with Mayo in MN. After spending several days of thorough testing, the cause of my PN is unknown. Yet, all my symptoms point towards having diabetes that every doctor I've been to all ask me several times if I'm a diabetic. My blood work is normal. Mayo could not give me any definitive cause. I know what I have but not the why. After chasing the why down the rabbit hole for years, I finally decided to concentrate on how to live with PN. You are right, PN is a life changing experience and for me, acceptance and learning to live with it, making necessary adjustments along the way is important. Be safe and best to you going forward. Ed
Replies to "@arcuri24 I think the non-diabetic group of us with PN is substantial. In 2019, I was..."
Like you my blood work was normal and I, too, once thought that I was diabetic. Since my brother was diagnosed with RA, I thought perhaps, my PN was due to an RA marker. I think you made the right decision in stating that you will try to live with PN. I must do the same as the doctors seem to only want to give me drugs like zoloft or gabapentin and their lack of a bedside manner only causes stress. Far from giving up, I, too, will in your words, make "necessary adjustment"--and some will be for better living--so I thank you for your kind, sympathetic words. Let us keep hope alive for an eventual cure!!
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Thank you, Ed