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sherrylou51b avatar

AA with bicuspid aorta and Sjogren's

Aortic Aneurysms | Last Active: Jun 29 5:21pm | Replies (3)

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Good morning from Sara,

I don’t have Sjogren’s, but I do have a connective tissue disease, which is an autoimmune like what you have. You’ll need to ask your doctor, who treats your autoimmune some questions. What I learned about my autoimmune disease is that my heart tissue can become brittle at a certain point. Brittle meaning that the surgeon may not be able to sew it up properly. My heart tissue may not be sew-able. If this occurs, then I may not be a candidate for surgery. For me, my ejection fraction and another factor are being monitored closely along with the size of my ascending aortic aneurysms. So far so good at 4.0. But like I said, we have different autoimmune diseases, so it may be different for you. This is not an answer, but I hope I’m pointing you in the right direction to consult with your doctor who treats her autoimmune disease as well as your cardiologist. Those two MDs need to have a conversation about you. I hope this information helps. 🙏🌺🩷

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Replies to "Good morning from Sara, I don’t have Sjogren’s, but I do have a connective tissue disease,..."

Thank you for your response. I have a follow up scans in September.
Cardiac surgeon says if even grows 2mm, will need surgery. I am going to
get a 2nd opinion at a better hospital, Seattle's UW. Kind of scary.