Vulvar Cancer: Anyone else?

I do have EMPD. I tried over the counter before I was diagnosed. I also would like to recommend that you buy a Bidet
It definitely helps to be able to rinse because urine definitely makes the area worse. Please stay in touch
It helps to hear from others. I have an appointment on Tuesday to see my Oncologist

I received 8 weeks daily radiation plus 8 weeks of chemo for vulvar cancer 3 years ago. You don’t realize the after effects from radiation can last a long time, even a life time. I was recently diagnosed with chronic radiation dermatitis. I have had lichen sclerosis for about 25 years that led to the cancer. My radiology oncologist suggested during treatment a gel called StrataXRT that was developed in Switzerland. It really helped me. I just asked her for another prescription for the gel. It is difficult to find in the US however can be purchased through a pharmacy called ProModRx located in Florida. The gel is really expensive however the pharmacy will only charge $89 if not covered by insurance. More information of the product can be found at Stratpharma. I am amazed that more radiation patients don’t know about the
gel.

I also am using various topical steroids but they burn. My doctor recommended combining the steroid with topical zinc or Vaseline that acts as a protectant but I hope I can soon replace with StrataXRT.

Hope this is a help.

Hello i wonder if anyone has used a kneeling ergonomic chair to take pressure off their crotch and anal area? I will be starting radiation and chemo soon and thought it might help. Any thoughts?

Just starting treatment in a couple weeks and thought a kneeling ergonomic chair might help take pressure off. I can find various kinds new on ebay from 50 to 200 dollars with free shipping. I think the angle might help. Its worth a try. Also a friend is getting me a link to a different kind of cushion that is supposed to be better than a donut. I'll pass this info along when i get it.

Hi Melinda,

I don’t know if a kneeling ergonomic chair could be helpful. If you are spending up to $200, you may want to consider buying a bidet type toilet seat that replaces your toilet seat and you can run water to the area while urinating. This helps relieve any burning sensation. I know there are many options to choose from that run reasonably priced to high end. We bought a washlet made by TOTO at Costco that works really well. The heated seats require an electric outlet close by and are easy to tap into the water line. There are less expensive types that do not need electricity however the water is cold which can also be soothing.

No one wants cancer and to have it on your vulva is pretty frightening for so many reasons. Please feel free to contact me if you have questions. I live in San Francisco and was a cancer volunteer at UCSF (University of California, San Francisco) for many years.