Connect
← Return to Looking to connect with people who have non-diabetic neuropathy
Discussion
Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Aug 15 1:13pm | Replies (1207)Comment receiving replies
I was diagnosed with length dependent sensiromotor neuropathy a few months ago. I was diagnosed with a compressed nerve which is chronic. I was surprised to hear about the neuropathy. My understanding is that it is progressive. I became quite depressed but now I am feeling pretty good with acceptance. I walk with foot discomfort. It is difficult to do much else. I am on Gabapentin which niw seems ti be helping. Physical therapy seems to be helping the compressed nerve issue but not the neuropathy.
I wonder what other people's experience is with this?
Replies to "I was diagnosed with length dependent sensiromotor neuropathy a few months ago. I was diagnosed with..."
I too have PN probably from radiation I had back in 2004 and 2010 due to me tactic thyroid cancer ,(which I still have.) I'm treated at Sloan Kettering which does not care about my PN of course.
Anyway, my PN started in 2010 and has gotten progressively worse. I also had 2 back surgeries in 2009 _ and 2011 and see a pain mgmt doctor. He gives me oxcodone and Gabapentin which help .my back pain but only help the PN for 2-3 hours 4x a day. It is crazy to me (I'm 78) that there is no help for people with this condition. No $$$ in it, I guess.
Thanks for these boards which I just found. At least you ate people with compassion and possible ideas. Good luck to us all.
Connect
As a lot of people on this site I developed neuropathy through receiving chemotherapy. I have had it for 7-8years. I use gabapentin. Not much else helps. Since yours is so new have you tried acupuncture?