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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 20 minutes ago | Replies (1189)Comment receiving replies
I, too, am in the non-diabetic group. In fact, my neuropathy has yet to be connected to any underlying symptoms. Some autoimmune diseases like RA, lupus and others have been ruled out. I do not have numbness--mostly tingling in my feet and shins and sometimes a rope burn feel in my arms--that comes and goes. Physical therapy has been great for me--I had some muscle wasting so I am enjoying the challenge of trying to rebuild my body. I sometimes get a bit of fatigue and any soreness--which is not painful--I attribute this to my body trying to rise to the challenges. If you have any ideas about anti-inflammatory foods I am all ears. I am cutting back on sugar and some dairy. All in all, my life has changed and I, like you, am trying to cope.
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@arcuri24 I think the non-diabetic group of us with PN is substantial. In 2019, I was so convinced that my PN was related to lower back issues, I was able to schedule an appointment with Mayo in MN. After spending several days of thorough testing, the cause of my PN is unknown. Yet, all my symptoms point towards having diabetes that every doctor I've been to all ask me several times if I'm a diabetic. My blood work is normal. Mayo could not give me any definitive cause. I know what I have but not the why. After chasing the why down the rabbit hole for years, I finally decided to concentrate on how to live with PN. You are right, PN is a life changing experience and for me, acceptance and learning to live with it, making necessary adjustments along the way is important. Be safe and best to you going forward. Ed