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Newly diagnosed invasive ductal and lobular in right breast
Breast Cancer | Last Active: Aug 28 9:05am | Replies (85)Comment receiving replies
They did not mention that. The only options that I have been presented with at this time is lumpectomy vs mastectomy. They are currently not recommending chemo because my type is resistant to chemo but they said depending on the results of my genetic testing and type of mutation, what they are proposing could change. It is all so overwhelming and the more I read/research the more conflicting information I get and I find myself going down some rabbit holes.
Replies to "They did not mention that. The only options that I have been presented with at this..."
I certainly have gone down rabbit holes. Have found ChatGPT very helpful. Log in with Apple or google ID. DCIS 22 yr ago L breast. Couldn’t get clear margins so mastectomy. Negative nodes. Declined tamoxifen. Fluke bilateral MRI in April. IDC in L breast again. Lumpectomy and removal of implant in 2 weeks. Oncotype score was 13. Refusing AIs. Will try very low dose tamoxifen I think. Radiation is my rabbit hole. Close enough to heart. Haven’t met with radiologist yet. I am so grateful I made it this far. 70 years now. Looking at proton radiation if it’s recommended. Will have to travel. No guarantee insurance will pay. Ready to get this going. Long 3 months
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Whatever you decide (lumpectomy or mastectomy) you'll get a new diagnosis following pathology from your tissues. I get it...it's hard to make a decision when when one report says this and another that. For my BRIP mutation three research articles say suspect variant one says verified variant for BC; it all depends on data the research group amassed. While most suspect variants are disproven (90 + %) I have sense that BRIP will eventually be deemed driving some mechanism of BC. But also, how do you make a decision when one day you have this diagnosis and the next day/path report says you have that - or another in addition! Seems this is the process that most of us have historically faced.
When I asked myself what is my biggest fear about my diagnosis - and what do I want to avoid (aka how do I want to live the rest of my life), I gained some clarity. I hope you gain some too - good luck making your decision!