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Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (85)
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Replies to "Yes, started Kevzara at Thanksgiving when I struggled getting below 10mg of Pred. I’m 59 and..."
I’ve been on Kevzara for 14 weeks and have dropped Pred to 2.5. (Was at 8 when I started K) It’s been smooth sailing. Now dropping .5 a week. I feel so good, but resisting faster taper.
I'm so happy for you. I only know how I feel on Actemra and there is no comparison to how I felt taking Prednisone. After I got off Prednisone, I continued to feel better.
I still have rheumatology visits every 6 months but we don't seem to have too much to discuss anymore. My prior rheumatology visits were mostly spent discussing how much Prednisone I was taking and the need to get me off Prednisone. I tried not to bother my rheumatolgist with too many pain complaints. My many updates to various doctors about ER visits and hospitalizations don't happen anymore. Mostly, I just show up at my monthly Actemra infusions.