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Anyone tried Kevzara for PMR?

Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (85)

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@dlhouck

Yes, started Kevzara at Thanksgiving when I struggled getting below 10mg of Pred. I’m 59 and debilitating PMR started in January of last year. I’m now down to 1 mg of Pred and plan to goto zero next month. Kevzara has been awesome for me. I feel so much better and have my energy back. Good luck!

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Replies to "Yes, started Kevzara at Thanksgiving when I struggled getting below 10mg of Pred. I’m 59 and..."

I'm so happy for you. I only know how I feel on Actemra and there is no comparison to how I felt taking Prednisone. After I got off Prednisone, I continued to feel better.

I still have rheumatology visits every 6 months but we don't seem to have too much to discuss anymore. My prior rheumatology visits were mostly spent discussing how much Prednisone I was taking and the need to get me off Prednisone. I tried not to bother my rheumatolgist with too many pain complaints. My many updates to various doctors about ER visits and hospitalizations don't happen anymore. Mostly, I just show up at my monthly Actemra infusions.

I’ve been on Kevzara for 14 weeks and have dropped Pred to 2.5. (Was at 8 when I started K) It’s been smooth sailing. Now dropping .5 a week. I feel so good, but resisting faster taper.