I hesitate to post here because I’m one of those people who found pancreatic cysts when imaging for another issue. They are incredibly small, yet the radiologist thought they “reflected” IPMN, branch duct, report below. So maybe they’ll just hang there until the end of time.
But, I’d feel really dumb in a few years if . . .
A discussion with my endocrinologist led to a recommendation to a local gastroenterologist with pancreatic cancer experience. I am a currently in survivorship at MD Anderson for BC. And would definitely go there for care, but it’s 3 1/2 hr away, so thought I’d have Baylor Scott & White do next early scan (if they will). I did have an abdominal CT scan by MDA in 2024 checking for uterine, or other, lower ab growths, found adrenal issue. Nothing reported on pancreas at that time, although CT might not image something this small?
My hope is the gastroenterologist that I see in about 6 months will order a MRI-MRCP in the spring. That’s about one year from first MRI.
If it were you, with the experiences you’ve had, would you do it this way?
Radiologist report, MRI June 2025:
Tiny cystic pancreatic foci which could reflect sidebranch IPMN. No pancreatic ductal dilatation. Surveillance imaging may be considered with follow-up MRI/MRCP in 6-12 months.
Narrative:
Pancreas: P tiny cystic foci measuring 2-3 mm located along the course of the main duct in the body and tail. Pancreatic divisum morphology. No ductal dilatation.
I had the MRI-MRCP and CT of abdomen and my tumor wasn't found until the PET scan. Even the first EUS only saw the cyst, which was partially covering the tumor in the neck. I thought it was caught early since it didn't show up on imaging, but it has already spread. They saw it when doing the ERCP to drain the cyst and so they sampled the tissue. They initially staged it as 1B until the PET scan showed it had spread to my liver and surrounding lymph nodes.
I would push for earlier imaging. Honestly, if not for my attack of pancreatitis out of the blue, no one would have been looking at my pancreas for anything. Hope that helps.