I have osteoporosis. ILC stage 1B.
I refused to take tamoxifen as my aunt had ovarian cancer. I have arrhythmias.
I started Breckinridge Letrozole on. 3/18/23 and lasted 17 mo.
on that.
Reached a point of unbearable pain in my entire hips.
Switched to Accord Letrozole a month later as it has less symptoms and recommended on an England BC site as the best one by women there.
Now at 2 yr 3 months point and having Achilles tendon pain and heal pain on right foot. I have a hard time walking in the night and when getting up.
Have a hard time walking and losing muscle strength which is a Letrozole side effect.
Have been advised to go off Accord Letrozole for 3 months and go on Extremesine which can cause carpal tunnel problems and heart problems.
Plus Estremesine causes all kinds of arm difficulties and pain .
Do I need to add these to the leg and muscle pain that I have?
Am 77. Have refused any bone meds. 3 Doctors told me not to take calcium tablets.
My osteoporosis only got very slightly worse.
Am taking Vitamin K with vitamin D which puts the calcium on the bones.
Magnesium is needed too for bones but not at same time so take at bedtime.
I still am taking the Letrozole so far.
I can’t reach a decision about what to do.
Another thought is that I could switch to a 3rd brand of Letrozole which was not even suggested or thought of by the medical oncologist.
All these AI’s have different additives which can cause different problems in those allergic to them.
I would be 80 when getting to the 5 year point.
Plus, am exhausted all the time which we all are.
Hi! @timely :
I am so sorry for all you've been through, my comrade; surely fighting the disease of BC is no walking in the park:(
Could you please let us know the reason for avoiding taking calcium tablets, please? I know 3 doctors had avised you on this, but did they give you the reason why?
Prayer for you and all of us for better health with plenty of pleasure enjoying beloved family on journey ahead!