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Hi I had DCIS at first but it had to be a mastectomy for me as the field was too large and multi foci but when they went in they found I had stage 1 IDC. The surgeon had gotten all the margins and I did not have lymph nodes invasiom. When the oncotyoe test came back I had a score of 49 so it would greatly enhance my chances of reoccurrence. So chemotherapy was suggested . Today was my first round and of course side effects have not yet kicked in.. like you I also asked my surgeon if I should remove the left breast.. her answer "why remove a perfectly healthy breast and why worry about it if there's nothing to worry about. She is so amazing. I have an excellent team .

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Replies to "Hi I had DCIS at first but it had to be a mastectomy for me as..."

Thanks for posting! I wonder how many times we get a more advanced diagnosis when a mastectomy is performed? I suppose I wouldn't remove a healthy breast if I knew it were healthy either- but I was told that my risk is 35% is for either breast given my two diseases (ductal and lobular). I wonder how many women have both ductal and lobular at the same time... I think it's great that we can post personal experiences because it helps to fill in the blanks. Of course, only a special population would sign up to do this too, so we don't know the full story but it's better than nothing!

Thanks for the hug, triciaot!

... and good luck with your chemo!