I’m in the same boat as you and I feel for you. . I have known that I have had LS for years but rarely had a flare. If I had a flare, I would just put some desonide on it which I was prescribed and what I was told to do. . Now I’m in a full-blown flare completely swollen inside my vagina. Have a deep cut on my perineum and am burning like crazy. She told me I was supposed to be using the Desonide a couple times a week but I did not know. She bumped my steroid up to betamethasone valerate 0.1 % topical ointment
Commonly known as: VALISONE but I think it’s working until it’s not. I just pray I don’t have cancer. She is doing a recheck in 6 weeks. If anyone has any suggestions please help. She said if I can get the Lichen under control I need to start on Estrogen cream since the lining on my vulva is gone.

To top it off I have interstitial cystitis so I’m just one big flare and so uncomfortable.

Best of luck to you. Sending love and prayers to all my fellow LS friends.