Hello, this is aechiku. I have been a nurse for 28 years, worked in Trauma ICU, Er Radiology and other critical care situations. And caring for critical patients, especially if it is very long term is very hard on the patient as well as the family and staff. I was not familiar with name of the condition mentioned before. However, The condition was there all the time. It is so stressful for the patient and family but also the staff caring for patients with life threatening or severe illness or conditions. I am glad it is being recognized and understood. God bless all who are suffering in this wa, Anita