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brennb1577 avatar

Diagnosed with MCD and started on Tacrolimus

Kidney Conditions | Last Active: Jun 28 11:19am | Replies (10)

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @brennb1577 I just wanted to check in with you today to see how you’re doing. You were feeling pretty awful last week so I hope you’re doing better now.
Did you stop taking the tacro? Any improvement with the symptoms you were experiencing?
What did your doctor suggest?

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Replies to "Hi @brennb1577 I just wanted to check in with you today to see how you’re doing...."

Hi @loribmt Yes, I stopped taking tacro as my nephrologist didn't want to continue with it until I'm cleared by a neurologist because of the seizure. My appointment is until September so a long wait. My husband is trying to find an appointment quicker but it's difficult. In the meantime, doctor said to take losartan, atorvastatin and spironolactone to manage the nephrotic syndrome.

I am slowly starting to feel better, but mornings are the most difficult, dizziness and nausea. I wake up with my hands a bit swollen and the swelling on my legs isn't completely gone. I'm struggled with depression before, and this is making more difficult. Sometimes I do feel hopeful and there are moments when I don't think about my condition. Praying I get better soon and for the many others who are also battling a disease or illness. Thank you for checking in with me.