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Deciding on treatment

Posted by MaxC @cobratk, Jun 24 1:59am

I am 77 have a Gleason score of 8 in stage 1 and am told it is very small. My Doctor has advised me that I should start hormone therapy and radiation treatments. I am scheduled for a PET scan in July and they are sending my biopsy out for a decipher test. Have read a lot about side effects with the hormone therapy and am not sure it is worth all the side effects. Seems like it really reduces your quality of life. Doctor said the with both hormone and radiation I would have about 80% chance of remission and with radiation only it was about 70%. My questions are if the hormones only give you 10% more but reduces your quality of life is it really worth it.

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jeff Marchi | @jeffmarc | Jun 27 12:59pm
In reply to @vancouverislandhiker "All good points . What is yoru PSA ? At Gleason 8 you dont want to..." + (show)
Profile picture for VancouverIslandHiker @vancouverislandhiker

All good points . What is yoru PSA ? At Gleason 8 you dont want to take that lightly What about operation, or maybe you have other comorbidities or just straight out your age preclude you from having a prostatectomy. They are effective as well as radiation. Surprisingly the outcomes are very very similar. Radiation and the operation are the two modalities that seem to be the most successful. I had the operation about five years back at PSA five. Gleason 3+4. My phone is he didn't buy them out but slowly climbed up to 0.14 ... This was a migration after three years of my operation. So two years ago I submitted myself 222 sessions of external beam radiation. The radiation oncologist said with the steep family history let's not wait till 0.2 and go after it now at 0.14 .THey did the Pelvic floor bed . I was too early for a PSMA -PET scan . It usually needs to be above 0.4 to get any sort of a target bounce . God Bless Sir ! James on Vancouver Island

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I bet those 222 sessions sure were tough 🙂

Somebody’s got a stuck key.

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vircet | @vircet | Jun 27 1:30pm
In reply to @vancouverislandhiker "All good points . What is yoru PSA ? At Gleason 8 you dont want to..." + (show)
Profile picture for VancouverIslandHiker @vancouverislandhiker

All good points . What is yoru PSA ? At Gleason 8 you dont want to take that lightly What about operation, or maybe you have other comorbidities or just straight out your age preclude you from having a prostatectomy. They are effective as well as radiation. Surprisingly the outcomes are very very similar. Radiation and the operation are the two modalities that seem to be the most successful. I had the operation about five years back at PSA five. Gleason 3+4. My phone is he didn't buy them out but slowly climbed up to 0.14 ... This was a migration after three years of my operation. So two years ago I submitted myself 222 sessions of external beam radiation. The radiation oncologist said with the steep family history let's not wait till 0.2 and go after it now at 0.14 .THey did the Pelvic floor bed . I was too early for a PSMA -PET scan . It usually needs to be above 0.4 to get any sort of a target bounce . God Bless Sir ! James on Vancouver Island

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James, is it really 222 EBRT sessions? This isn't a typo error?
I have heard of 20, 28 sessions, or a bit more.
(First time, your case, that I heard 3 digits EBRT.)

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VancouverIslandHiker | @vancouverislandhiker | Jun 27 2:59pm
In reply to @vircet "James, is it really 222 EBRT sessions? This isn't a typo error? I have heard of..." + (show)
Profile picture for vircet @vircet

James, is it really 222 EBRT sessions? This isn't a typo error?
I have heard of 20, 28 sessions, or a bit more.
(First time, your case, that I heard 3 digits EBRT.)

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Sorry that was a typo. I had 22 sessions of EBRT . No ADT etc …. Seemed to work for me . And you sir ? James

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VancouverIslandHiker | @vancouverislandhiker | Jun 27 3:22pm
In reply to @jeffmarc "I bet those 222 sessions sure were tough :-) Somebody’s got a stuck key." + (show)
Profile picture for jeff Marchi @jeffmarc

I bet those 222 sessions sure were tough 🙂

Somebody’s got a stuck key.

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Ha ! Just inattentive 🥳😅 22 sessions. No ADT etc

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vircet | @vircet | Jun 27 4:24pm
In reply to @vancouverislandhiker "Sorry that was a typo. I had 22 sessions of EBRT . No ADT etc …...." + (show)
Profile picture for VancouverIslandHiker @vancouverislandhiker

Sorry that was a typo. I had 22 sessions of EBRT . No ADT etc …. Seemed to work for me . And you sir ? James

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I had 5 fractions of SBRT, total 40 Grey. I was on Orgovyx (ADT) starting two weeks before my first treatment; I have completed three months of ADT as of this week.
I was Gleason 7 (3+4 on three cores, 0+2 on four cores), unfavourable intermediate with >half of all cores positive. My oncologist said we'll see if I can get off Orgovyx after 8 months or a year.

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MaxC | @cobratk | Jul 10 5:53pm

I am just getting ready to start hormone therapy with ORGOVYX and was wondering if it matters what time of the day you take it. I was thinking first thing in the morning.

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jeff Marchi | @jeffmarc | Jul 10 6:57pm
In reply to @cobratk "I am just getting ready to start hormone therapy with ORGOVYX and was wondering if it..." + (show)
Profile picture for MaxC @cobratk

I am just getting ready to start hormone therapy with ORGOVYX and was wondering if it matters what time of the day you take it. I was thinking first thing in the morning.

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That’s the time I’ve always take it. Apparently, the half-life of Orgovyx is very short, 25 hours, so you don’t want to miss that pill in the morning.

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stew80 | @stew80 | Jul 11 12:49pm

222 sessions? I hope that's a typo. 🙂

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robertov | @robertov | Jul 12 12:31pm
In reply to @jeffmarc "That’s the time I’ve always take it. Apparently, the half-life of Orgovyx is very short, 25..." + (show)
Profile picture for jeff Marchi @jeffmarc

That’s the time I’ve always take it. Apparently, the half-life of Orgovyx is very short, 25 hours, so you don’t want to miss that pill in the morning.

Jump to this post

I always take it in the evening. I take other medications and keep them in the std weekly case. It’s all in the evening as part of the evening ritual or all in the morning where i have no ritual. I’ve missed in the evening a few times but mostly I’ve been good about it.

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tjp1958 | @tjp1958 | Jul 13 12:24pm

I think original post was: if the hormones only give you 10% more but reduces your quality of life is it really worth it.

Looking for thoughts on that question too!

Thx

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