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Hello,
I have hypoglycemia and blood chemistry that is indicative of an insulinoma. My most recent blood work showed a fasting glucose of 52 mg/dL, C-Peptide of 2.6 ng/mL, Proinsulin of 112.3 pmol/L, and insulin of 11 ulU/mL. I have fairly frequent bouts of hypoglycemia and my glucose levels sometimes drop into the upper 30's (I have a CGM). I am seeing an Endocrinologist, but she doesn't have any experience treating insulinoma's. I did have a CT scan, but it did not indicate a tumor. The endocrinologist is suggesting I find a surgeon and have them try to locate the tumor during surgery. This makes me a bit nervous. I would rather have the tumor located prior to going into surgery. Should I request endoscopic ultrasound to try to locate it? I have also read about calcium stimulation test that is apparently very successful at finding the tumor.
Thanks!
Replies to "Hello, I have hypoglycemia and blood chemistry that is indicative of an insulinoma. My most recent..."
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Hello @bmkelldog and welcome to the NETs support group on Mayo Connect. I can certainly understand your hesitancy to undergo surgery before understanding where a tumor might be located. I would strongly recommend that you see a NET specialist. A second opinion with a NET specialist might be helpful at this time. If you would like to seek help from the Mayo Clinic, contact one of the appointment offices using this link, http://mayocl.in/1mtmR63. Mayo has three locations in Minnesota, Florida, and Arizona.
I would also like to invite @ahtaylor to post with you regarding her experiences with Insulimona. She has had the calcium stimulation test as well as surgeries.