← Return to More than 90% of my seizure happened when I was sleep

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@dannoyes
Hi Dan,
It's incredible how technology can help validate some of our instincts about what's happening with our bodies. While those watches don't replace tests and/or medical guidance, they can provide insights into our condition and give our doctors additional data to work with. I'm so glad to hear that your StressWatch has given you this important insight!!!
I use a Garmin watch that monitors my sleep, heart rate, stress levels, and other metrics. I'm still learning to use all its features, but it has already provided both my doctor and me with valuable data and has been helping me with my trigger management. For instance, when my watch shows I had poor deep sleep – a well-known trigger for my seizures – I take extra precautions.
Your message actually reminded me that I need to update my Excel spreadsheet with recent sleep data from my watch. I have a doctor's appointment next week and want to show him how my sleep has improved since some changes in my medication. Thank you for this reminder!!!
What type of seizures do you think you're having during sleep? Are you able to fall back asleep easily after these nocturnal seizures? Have you noticed any heart rate changes during those nighttime episodes, or do you see patterns with higher stress levels during the day before those night seizures occur?
I hope your upcoming 5-day EEG at Mayo provides you and your doctor with comprehensive answers! You might want to share your StressWatch findings with the EEG team
Best of luck with your Mayo EEG in August!!!
Chris

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Replies to "@dannoyes Hi Dan, It's incredible how technology can help validate some of our instincts about what's..."

@santosha - you mentioned that as an example of your use of your smart watch, when it shows you had poor deep sleep – a well-known trigger for your seizures – you take extra precautions.

Will you share more about what extra precautions you take in those instances?