Severe pain after stage2 y90 treatment

I'm sorry you're in so much pain. I pray that you find out it was worth it.
My husband had y90 15 years ago. He did have a great deal of pain. He typically has an extremely high pain tolerance but that seemed to hit him pretty hard. It did get better but it took a little while. You're still only a few days out but hopefully you start feeling better soon.

So sorry you had this occurrence. I had this 3 years ago and had truly no side effects. Please get back to your doctor and relay these after effects. This doesn’t sound normal.
I was given a light pain reliever but didn’t need to take it.

Thank you. The IR department didn’t even leave me a phone number to call. I finally called the triage nurse at my liver oncologist’s office who gave me some remedies to relieve the constipation. Ironically my PCP called me Monday and asked me to come in today. He gets my reports even though he’s with a different group. I had a double mastectomy with reconstruction 3 years ago and they called me almost every day to see how I was doing. Go figure.

I'm glad you're doctors are following up. Good on your PCP for reading and following up on the reports! He's a keeper!

The Dr that did the y-9o on me called me and warned me 1 bead got loose and it lodged between the liver and stomach. It caused a radiation ulcer in my stomach that hurt really bad i couldn’t even drink water without severe pain . It was back to the feeding tube for a couple months. My UM team told me it was first time it happened just my luck!

@kevinmonroemi

Did your symptoms ever improve? My mom is currently experiencing this and has been in and out of the ER for a bit now.

Hello @jespi and welcome to the NETs support group on Mayo Connect. I'm happy to know that you are looking for answers on your mom's behalf. As this is your first post, would you post a bit about her NETs journey? I'm wondering how long she has been diagnosed and what other treatments she may have had.

I look forward to hearing from you again.

@kevinmonroemi

I actually suspect that’s what happened to me but doctors denied a bead got loose. Then how did I get the ulcer??? I’m still having issues and was taking medication for GERD (famotidine) and ulcer prescribed by my gastroenterologist after upper endoscopy. The ulcer med (carafate) made me nauseous. My oncologist advised me to stop all meds including cabometyx for the NET. Now I just take omeprazole.

It took quite a while a few months! I was told they take twice as long to heal compared to other ulcers. I also had a kidney that was damaged and no longer working

@baker23 I Am not sure how they knew a bead got loose but it did. I think herd will cause ulcers I also had ulcers from excess Gastrin. I take a lot of ppi meds and carafate 3-5 times daily