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Decreasing Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: 20 hours ago | Replies (24)

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@megz

I'd never try to compete with you for the longest list of subsidiary ailments, but did you notice the "etc" at the end of my list? 😉 The sudden onset of those new ailments immediately followed the flare, so I attribute them to increased inflammation rather than PMR or prednisone. Chronic or excessive inflammation is damaging, with or without PMR.

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Replies to "I'd never try to compete with you for the longest list of subsidiary ailments, but did..."

Chronic systemic inflammation was how my rheumatologist described everything. My electronic medical records document every correspondence we had over the years. One time I tried to pin her down to get her to say exactly what diagnosis I had. This was how she responded to me. She only addressed my main concerns.
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"Dx: PMR with a history of reactive arthritis.

Prednisone does not protect your lumbar spine. If anything, due to increased risk for osteoporosis, it actually threatens your lumbar spine.

Adrenal insufficiency: There is no rocket science for the issue of adrenal insufficiency--it just means we need to taper carefully.

Our treatment goal was to do slow taper to get you to 5 mg/day then just keep you there for a while. Suggest tapering by 0.5 to 1 mg per month. Goal is to get to 5 mg/day if possible, then hold there.

Let me know if you hit any snags before you reach 5 mg/day."
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This conversation predated Actemra by a year or so.